Living Beyond Breast Cancer- 2016 Philadelphia

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We were thrilled to accompany AnnMarie from Wisdo to the Living Beyond Breast Cancer conference in Philadelphia. This conference was specifically designed for the metastatic breast cancer community. Men and women from all over the country (and Canada) came together for this special weekend.

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What is Wisdo?

"Wisdo is helping people take on life’s greatest challenges, by equipping them with step by step wisdom from those who have been there.

Throughout life, people continually go through significant life transitions such as, getting into college, marriage, parenthood, divorce, relocation, serious illness, retirement and hundreds more. These life events and challenges often leave people lost, seeking experience based knowledge.

But despite an unprecedentedly interconnected society abundant with knowledge, the practical wisdom of those who walked the same path before them is not easily accessible nor personalized or timely.

Wisdo helps communities to overcome this need by allowing them to extract step by step timelines of life's challenges and then utilizing these timelines to recommend experienced users who've been there, as well as relevant contributed content."

One by one each of these Thrivers and caregivers came in to give their personal and unique insights, adding to the collaborative network for the Wisdoian community. Their journeys of challenges, triumphs, heartbreaks, everyday life, love, and hope were all candidly captured. Each story shared bonded this community a little tighter.

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Caregivers not only take care of physical needs but also provide so much emotional support. They stand as strong witnesses to the journey with a steady grip of a hand that doesn't let go.

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We were so honored to meet these two men (and their beautiful strong wives) who very candidly discussed with us what is like to be a man with breast cancer and living in a woman dominated breast cancer world. For more about their stories there is a link below.

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The group METup coordinated at die-in at Independence Hall to raise awareness for metastatic breast cancer. We walked through the streets of Philadelphia "Dying for a Cure".

113 people die of metastatic breast a day. To have metastatic breast cancer to also know there is no cure. Despite the strong awareness campaigns for breast cancer, Stage IV or metastatic breast cancer is widely ignored. In the U.S., most money raised in "Pink" campaigns goes towards awareness in early detection, prevention and support groups. "Pink" contributions are not typically focused on metastatic breast cancer research. There are thousands of men and women around the world that are "dying for a cure".

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This little one with her mom...

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Many spoke in honor of friends and loved ones who are currently battling or have passed from this disease.

The die-in lasted as long as it took for 113 chimes of a bell to be rung. Each chime representing the 113 that die everyday from metastatic breast cancer. After this extremely moving tribute a candle light vigil was held.

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Through out the weekend friendships were made and existing bonds were strengthened. Every person we encountered made it very clear that despite their diagnosis they are very much ALIVE! Living lives filled with love, hope and optimism.

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For more information and personal stories about metastatic breast cancer:

METAvivor

METup

Men Have Breast Cancer Too- Male Breast Cancer Coalition

Stupid Dumb Breast Cancer

A Terminal Case of Hope

Darn Good Lemonade

Cult of Perfect Motherhood

Bald Ballerina

Booby and the Beast

Flattopper Pride

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"Alone we can do little; together we can do so much." - Helen Keller